You are cordially invited to our next webinar which will be held online on Thursday 16 November 2023 @ 12.30 pm
How do you involve people with learning disabilities be involved in decisions around the end of life?
That is the question that the Victoria & Stuart Project is trying to answer.
The project has an inclusive team of researchers and is led by Professor Irene Tuffrey-Wijne at Kingston University London. Their research partners are Open University, MacIntyre, Dimensions, VODG and The Mary Stevens Hospice. The PCPLD Network is a collaborator on the project.
We have worked with a large team of people with learning disabilities, families, support staff and professionals in health and social care settings (including palliative care).
We have looked at end of life care planning resources that are already out there (see this webinar)
We have tried them out and thought about what works, what doesn’t, and why (see this webinar)
We have co-produced a new set of resources that we think will really help people.
In this webinar, we will:
Show you the new resources for ILLNESS PLANNING (end of life care) and FUNERAL PLANNING
Explain why we made them this way, and why we think this will work well
Explain how you can use them
Tell you how YOU can get involved in trialling the pictures
The webinar will be of interest to anyone working with people with learning disabilities, anyone working with people at the end of life, families and carers, policy makers and commissioners. People with learning disabilities are also welcome to watch the webinar. Most of the webinar is accessible, although there may be some difficult words and concepts. We recommend that you don’t watch it on your own, but with other people; and that you take some time to talk about it together afterwards.
Thank you.
PCPLD Network Events and Digital Services Team
